Are You a Carer?

Many people who care for others don’t see themselves as ‘carers’; they often think of it as simply helping a friend or loved one. But caring can be complex, overwhelming, and all-consuming. That’s why having a supportive community is so important.

For those looking after someone with a rare disease, the challenges can be even greater, making support tools and networks even more vital.

Caring is a privilege. If you’re unsure whether you’re a carer or where to find support, listen to the stories of three carers who share their experiences.