There is no right or wrong way to feel when caring. Being honest with yourself and acknowledging your feelings are valid is important. Throughout each person’s caring journey there will be a range of emotions. It is important to recognise different emotions and acknowledge they are ‘real’, to help you work out how best to manage different emotions in a way that works for you.
Every caregiving journey is unique and your story matters. Whether you’re a family member, friend, or professional supporting someone with a rare disease, we invite you to share your experiences. Your story could offer comfort, insight, or hope to others walking a similar path.
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