Self-care is crucial for carers to maintain their mental health and well-being – how can we support people we care for if we don’t look after ourselves? We know that time to yourself is hard to find while supporting loved ones with complex health needs. Carving out time to yourself is essential – even taking a quiet 15 minutes to sit with a cup of coffee can make a big difference to your mental health. Below are 30 suggestions to support self-care tailored for carers of people with rare diseases:
Remember, self-care is a personal journey, so feel free to choose whatever elements suit your own needs and preferences.
Week 1: Establishing a Routine
Week 2: Connecting with Others
Week 3: Personal Growth
Week 4: Relaxation and Fun
Every caregiving journey is unique and your story matters. Whether you’re a family member, friend, or professional supporting someone with a rare disease, we invite you to share your experiences. Your story could offer comfort, insight, or hope to others walking a similar path.
Submit Your Story