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PACE Monthly Plan

Caring for the Carer: A Monthly Self-Care Guide

Self-care is crucial for carers to maintain their mental health and well-being – how can we support people we care for if we don’t look after ourselves?  We know that time to yourself is hard to find while supporting loved ones with complex health needs. Carving out time to yourself is essential – even taking a quiet 15 minutes to sit with a cup of coffee can make a big difference to your mental health.  Below are 30 suggestions to support self-care tailored for carers of people with rare diseases:

Remember, self-care is a personal journey, so feel free to choose whatever elements suit your own needs and preferences.

Caring for the Carer: A Monthly Self-Care Guide image

Monthly Plan

Week 1: Establishing a Routine

  1. Day 1: Mindful Breathing - Spend 10 minutes practicing deep breathing exercises.
  2. Day 2: Physical Activity - Go for a short walk or engage in light exercise.
  3. Day 3: Healthy Eating - Prepare a nutritious meal and take pleasure eating it.
  4. Day 4: Sleep Hygiene - Establish a relaxing bedtime routine to improve sleep quality.
  5. Day 5: Hydration - Focus on drinking enough water throughout the day.
  6. Day 6: Digital Detox - Spend an hour away from screens and social media.
  7. Day 7: Gratitude Journal - Write down three things you’re grateful for.

Week 2: Connecting with Others

  1. Day 8: Reach Out - Call or meet a friend or family member for a chat.
  2. Day 9: Support Group - Join a support group for carers, either online or in person.
  3. Day 10: Express Yourself - Write a letter or journal entry about your feelings.
  4. Day 11: Volunteer - Spend some time helping others in your community.
  5. Day 12: Social Activity - Plan a fun activity with friends or family.
  6. Day 13: Share Experiences - Talk to other carers about your experiences.
  7. Day 14: Positive Affirmations - Start your day with a positive statement to yourself.

Week 3: Personal Growth

  1. Day 15: Learn Something New - Take up a new hobby or learn a new skill, for example by a short online course, browsing a website for gardening tips, exploring self-care options…
  2. Day 16: Read - Spend time reading a book or article that interests you.
  3. Day 17: Creative Outlet - Engage in a creative activity like drawing, painting, or crafting.
  4. Day 18: Meditation - Practice meditation for 15 minutes.
  5. Day 19: Nature - Spend time outdoors, appreciating nature.
  6. Day 20: Music - Listen to your favourite music or play an instrument.
  7. Day 21: Reflect - Reflect on your personal goals and achievements.

Week 4: Relaxation and Fun

  1. Day 22: Pamper Yourself - Take a relaxing bath or treat yourself to a spa day at home.
  2. Day 23: Movie Night - Watch a movie or show that makes you happy.
  3. Day 24: Cook/Bake - Try a new recipe or bake something you love.
  4. Day 25: Game Time - Play a game, either solo or with others.
  5. Day 26: Mindfulness - Practice mindfulness exercises or yoga.
  6. Day 27: Laugh - Watch a comedy or chat with someone who makes you laugh.
  7. Day 28: Unplug - Spend a day without checking emails or social media.
  8. Day 29: Self-Compassion - Be kind to yourself and acknowledge your efforts.
  9. Day 30: Celebrate - Celebrate your achievements and progress over the past month.

Share Your Rare Story

Every caregiving journey is unique and your story matters. Whether you’re a family member, friend, or professional supporting someone with a rare disease, we invite you to share your experiences. Your story could offer comfort, insight, or hope to others walking a similar path.

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