Story Submissions

Every caregiving journey is as unique as the person it supports. At Caring with Rare, we believe in the power of personal stories to inspire, connect, and uplift. Whether you’re a parent, sibling, partner, friend, or professional, your voice matters.

We know that caring for someone with a rare disease often comes with challenges that are hard to put into words — but also moments of resilience, love, and unexpected strength. By sharing your experience, you’re not only telling your story — you’re helping to build a library of real-life insights, comfort, and hope for others who may be walking a similar path.

This space is here for you. Submit your story below — as short or as long as you’d like — and know that your journey could make all the difference to someone else navigating the rare road.